Infertility is a disease of the reproductive system that impairs the body’s ability to perform the basic function of reproduction.” That’s what the American Society for Reproductive Medicine (ASRM) – the professional society for reproductive medicine physicians and providers – declared back in 1993. Despite this statement by professional experts, it took many more years for other major health groups to formally agree.
WHO and ICMART Weigh-in
Following the ASRM declaration, in 2009, the World Health Organization (WHO) and the International Committee for Monitoring Assisted Reproductive Technology (ICMART) decided to define infertility as “a disease of the reproductive system defined by the failure to achieve a clinical pregnancy after 12 months or more of regular unprotected sexual intercourse.” These bodies influence perspectives and practice in the international health community and this definition is now part of the WHO-ICMART glossary published in 2009.
Another notable change occurred afterward when the International Classification of Diseases (ICD)which governs billing codes used to obtain payment added “infertility” to the list of ICD-9 codes.
The AMA Joins WHO/ICMART
However, it wasn’t until 2017 that the American Medical Association (AMA) joined WHO/ICMART in also declaring that infertility is a disease. Persuaded by the ASRM, the AMA House of Delegates adopted a resolution during their 2017 annual meeting describing infertility “as a disease state with multiple etiologies requiring a range of interventions to advance fertility treatment and prevention.” In a summary of their decision, the AMA stated their hope that the new designation would remove some of the stigmas and importantly, “promote insurance coverage and payment.”
Lobbying the AMA and others has been part of a strategic effort by ASRM to ensure that more Americans have access to reproductive medicine. According to past president Richard Paulson, MD, “We all feel this way and realized it was time to put our efforts behind it,” adding infertility doctors have become “increasingly sensitive to the fact that much of the American population simply can’t afford infertility treatment.”
Financial constraints not only influence whether or not infertility treatments are covered but also to what extent. Infertility professionals have expressed concern that some patients are making suboptimal decisions about treatment, choosing to transfer multiple embryos to the uterus at once, instead of the now-recommended single embryo transfer, in order to avoid paying for more procedures. This leads to a higher risk of complications for mother and child and higher long-term health care costs for insurance companies.
Despite several major health groups declaring that infertility is a disease, many complex and varied factors actually determine what is covered and paid for as part of healthcare coverage. Depending on the type of insurance, employers lead the decision-making, but often insurance companies have more influence. Major factors that determine coverage include cost, prevalence, and politics/external pressures (including state advocacy and internal pressure from employees on employers).
In writing about the politics and culture of parenthood for CNN Health, Elissa Strauss has her own perspective as to why insurance companies still do not sufficiently cover treatments such as in vitro fertilization (IVF): “economics, ignorance and sexism.”
There’s widespread agreement on the role of economics and the influence it has on covering infertility treatment. Some argue that the label “experimental” continues to be problematic. It’s hard to argue, for example, that IVF remains experimental forty years after the successful birth of Louise Brown and 8 million more babies worldwide.
Coverage Rates for IVF
Two other factors have led to low coverage rates for infertility treatment according to Strauss: sexism and the perception of who needs IVF. She points to insurers’ treatment of women’s issues as a “niche” health issue, starting with the fact that 30 years ago childbirth was not covered by insurance and had to be paid out-of-pocket. She believes this attitude continues to play a role in the denial of coverage. She notes the irony of treating infertility as a “female” issue when half of the infertility cases are associated with male factor infertility.
The other issue Strauss believes has interfered with gaining wider insurance coverage is the perception that procedures like IVF are only needed/used by wealthy women who require the procedure because they delayed having children until too late while they pursued careers. The demographics of who is affected by infertility and would like treatment definitively shows otherwise.
The trend for coverage of infertility is definitely improving but the most active sectors embracing this change are technology firms, banking and other highly compensated industry sectors as described in this New York Times article. There is also wide variation in what is covered, how much is paid and even whether pre-authorization is required before receiving treatment.
Does IVF Employer Coverage Increase Employee Retention
The article also cites an analysis of infertility coverage by broad industry sectors and the top 250 employers for the 2017/2018 benefit year. A survey of a subset of 10,000 verified IVF patients who had complete IVF coverage in 2017 found employees who had their IVF covered reported being more likely to remain in their job for a longer period (62%), were more willing to overlook shortcomings of their employer (53%) and were more likely to work harder (22%). And, the vast majority (88%) of women who had their IVF fully paid by their own employer decided to return back to that employer after maternity leave.
There is also a higher rate of employee satisfaction with their employer if fertility benefits are offered compared to employers that do not offer a benefit:
4 times more believe their employer is meeting the needs of today’s families
5 times more believe their employer listens to their needs
5 times more believe their employer cares about their well-being
Comments from survey respondents also revealed stark differences in how employees felt about their employers based on whether or not they offered a fertility benefit. One woman stated that because her employer offered such coverage “I’m loyal – it’s the reason I stay.” Those employers who did not offer coverage earned negative comments from employees including: “behind the times in health coverage,” “makes me feel undervalued,” “discriminated against this disease,” and “must be a better place to work, I’m looking for a better job with better benefits, better understanding.”
While coverage of infertility has improved over the years – largely from competitive pressures among companies looking to attract and retain the best employees – there is definite room for improvement. So, how does a disease like infertility garner inclusion as a covered benefit? External pressure can drive decision-making by employers who determine benefit coverage with insurers and with state and federal legislators to enact mandates to ensure appropriate coverage for needed treatment. RESOLVE: The National Infertility Association serves as a valuable resource and advocate on both counts.
RESOLVE has developed material to help individuals advocate on their own behalf with their employer to add fertility coverage to benefit packages. This includes talking points to use with your Human Resources department and/or benefits manager and a template letter you can customize. The resources are available through the RESOLVE Coverage at Work Initiative.
The letter provides the type of information employers need including studies that show there actually are minimal costs involved in adding coverage including improved health outcomes that also work to lower employer expenses. You can download the template “Insurance Coverage Request Letter” by clicking here.
Today, employees often have more choices so employees facing infertility have every reason to expect that employers can and should offer a fertility benefit. Surveys and studies show it makes companies more competitive, increases their ability to attract and retain the best employees, enhances employee morale and productivity, and improves health outcomes.
In addition to helping you improve fertility coverage directly through your employer, RESOLVE plays an active advocacy role working to secure state legislative mandates requiring insurance coverage for infertility treatment. According to RESOLVE, “Currently only 16 states have infertility insurance coverage laws, and four states have fertility preservation laws for iatrogenic (medically-induced) infertility.” To learn more about what your state does – or doesn’t do – when it comes to requiring insurance coverage of infertility treatment, you can click on the RESOLVE list.
In addition to reporting on whether your state mandates coverage for infertility treatment, RESOLVE also produces a Fertility Scorecard that ranks each state on how well they’re doing on the issue. You can learn more about RESOLVE’s 2018 state advocacy issues here and find out how to become involved.
Whatever varied factors you believe may influence whether infertility is considered a disease with coverage for needed treatment, CNN Health’s Strauss notes there are “thornier” issues to consider: is having a baby a privilege or a right? Such questions parallel the discussion of whether or not access to health care is a right; while most countries consider it to be so, this position is not universally held in the US. For Kara N. Goldman, MD, assistant professor of reproductive endocrinology and infertility at New York University who has advocated for comprehensive infertility coverage, “I think of reproduction as a basic human right. Patients should be able to have families, and we have the medical care to make that possible.” The view that reproductive rights include the right to diagnosis and treatment of infertility is increasingly becoming the international norm.